Connecting people to genetic services - opportunities for innovation

Location: Portsmouth Harbor Events & Conference Center, 100 Deer St. at 22 Portwalk Place, Portsmouth, NH 03801

For more information please contact Kate Filanoski (kate.filanoski@unh.edu) .

Day 1 Agenda (draft):

A focus on the role of family voices organizations in linking families to genetic services.
Participants: Family Voices staff, NERGN staff, Family Members

  • 10 am - Welcome & Introductions
  • 10:30 am - Supporting Connections to Genetic Services via Quality Improvement
  • Noon - Lunch
  • 1 pm - Review of NERGN resources available for family and staff
  • 2 pm - Review and discusson of family expectations for genetic services
  • 3 pm - Lessons learned from the day
  • 4 pm - Adjourn

Day 2 Agenda (draft):

Annual in-person meeting of the NERGN steering committee in the morning, and Annual meeting of all NERGN stakeholders starting at 10 AM.
Annual Meeting Participants: Steering Committee, Primary Care Providers, Family Voices staff and connected family members, Genetic Service Providers, NERGN staff

  • 7:30 am - Steering Committee breakfast meeting (closed)
  • 10 am - Opening remarks
  • 10:30 am - Panel discussion: Success stories and barriers in connecting families with genetic services
  • Noon - Lunch
  • 1 pm - Considerations for genetic services for immigrants and refugees
  • 2 pm - Group discussion: What should families expect from their provider
  • 3 pm - Next steps
  • 3:30 pm - Adjourn

Contact Information

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Attendance

Thursday, May 16, 2019: A focus on the role of family voices organizations in linking families to genetic services.
Participants: Family Voices staff, NERGN staff, Family Members

Will you be attending Day 1 of the NERGN Annual Meeting on May 16, 2019?

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Will you be having lunch?
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Please indicate any dietary accomodations here:

Friday, May 17, 2019: Annual in-person meeting of the NERGN steering committee in the morning, and Annual meeting of all NERGN stakeholders starting at 10 AM.
Annual Meeting Participants: Steering Committee, Primary Care Providers, Family Voices staff and connected family members, Genetic Service Providers, NERGN staff

Will you be attending Day 2 of the NERGN Annual Meeting on May 17, 2019?

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Are you a member of the Steering Committee?

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Will you be attending the Steering Committee Meeting? (This meeting is only open to Steering Committee members.)

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Please indicate any dietary accommodations that you may need for breakfast here:
Will you be having lunch?
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Please indicate any dietary accomodations here:

Travel Accomodations

Per UNH's travel policy, if you live more than 50 miles away we can provide overnight accomodations and parking for you at the venue during your stay. As in previous years, we'll cover mileage and tolls. Please indicate the night(s) you would like to stay. If you have any questions about whether you would qualify please select "Contact Me".

Overnight accomodations for Wednesday, May 15, 2019?

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Overnight accomodations for Thursday, May 16, 2019?

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Parking

If you are not staying overnight, we can pay for your parking during the day. Please indicate which days, if any, that you will need parking.

I need day parking on Thursday:
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I need day parking on Friday
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Accommodations

Please note any accessibility accommodations or other needs here:

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